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NATIONAL
ORGAN
WAITLIST

The National Organ Waitlist (NOW) provides an efficient, secure and continuously updated web-based listing of patients who need heart, lung, liver, pancreas or bowel transplants. Across Canada, transplant programs and organ procurement agencies that once relied on inefficient paper-based systems can now search this comprehensive, real-time online resource for an accurate picture of organ availability and current wait times.

NATIONAL
ORGAN
WAITLIST

The National Organ Waitlist (NOW) provides an efficient, secure and continuously updated web-based listing of patients who need heart, lung, liver, pancreas or bowel transplants. Across Canada, transplant programs and organ procurement agencies that once relied on inefficient paper-based systems can now search this comprehensive, real-time online resource for an accurate picture of organ availability and current wait times.

FOCAL POINT:  EVOLVING A NATIONAL OTDT FRAMEWORK
FOCAL POINT:  EVOLVING A NATIONAL OTDT FRAMEWORK

In 2008 federal, provincial and territorial governments (except Quebec) invited Canadian Blood Services to play a leading role in Canada’s organ and tissue donation and transplantation (OTDT) system. As a result, we helped to develop a national strategy and define roles and responsibilities. We built, and continue to manage, the data collection and reporting infrastructure that supports the Canadian Transplant Registry and its three interprovincial organ transplantation programs: the Kidney Paired Donation program, the National Organ Waitlist and the Highly Sensitized Patient program. We coordinate and generate timely, reliable network-wide reporting. And we collaborate on initiatives to develop leading OTDT practices, and to make the latest knowledge available through professional and public education programs.

Taken together, our various responsibilities reflect a commitment to continuous system improvement that we share with all of our OTDT partners nationwide — including (through a separate agreement) the Quebec government. This work is an excellent example of innovative Canadian partnership. However, as the system evolves, there is a need for a governance framework that will further clarify responsibilities and accountability between programs, provincial authorities and Canadian Blood Services, especially in the areas of interprovincial organ sharing and data reporting. We have a critical role to play in developing and implementing this framework. Discussions have started with organ procurement organizations, health ministries and transplant and donation programs on how to bring greater transparency and accountability to the system for the benefit of Canadian patients.